A Scottish woman living with a rare medical condition that causes uncontrollable breast growth says she spent more than a decade seeking answers before receiving a diagnosis — and that the condition affects nearly every aspect of her daily life.

Summer Robert, 28, was diagnosed with macromastia at age 25. She stands 4 feet 11 inches tall and currently wears an R-cup bra. In the past year alone, she grew 11 bra sizes, a pattern her doctors say is driven by hormonal shifts.

“Basically, I go through growth spurts,” Robert said, adding that the rapid changes are triggered by hormones. Doctors have told her the dramatic size change she experienced last year was caused by a common hormonal shift many women encounter in their 20s, though her response is far more pronounced. Beyond that, she said, little is medically understood about the condition.

Robert first noticed something was different at age 8, when she began wearing a C-cup bra. She would spend the next 17 years without a diagnosis.

“I had been going to the doctors since I was like 14 or 13 years old, and not one of them diagnosed me. No one told me that there was a condition,” she said. “They all just said it was puberty. They all just said I had to lose weight. It was ridiculous.”

She said the medical community’s limited knowledge of macromastia contributed to the delay. When she was finally diagnosed, she recalled, her doctor “literally printed a Wikipedia page and gave me the Wikipedia page.”

Growing up in Scotland, Robert said she faced near-constant hypersexualization — catcalling, school dress code violations and social stigma. As an adult, she turned to content creation on OnlyFans about two years ago, a decision she credits with helping her embrace her body.

Still, the condition creates significant physical challenges. Finding clothes is a persistent obstacle, given the disproportion between her chest and waist. She said virtually everything she wears must be “super stretchy.”

“Nine times out of 10, it will still not fit,” she said. “It’s just day-to-day things that you would think are so easy — it’s so difficult.”

Nearly any physical activity requires Robert to wear a back brace, she said, whether she is walking for an extended period or doing household chores. Joining a gym, she added, is not a realistic option.

Robert said she has consulted specialists about a breast reduction, but doctors told her the procedure would only provide temporary relief.

“We spoke to a breast reduction specialist, and he told me that they’d just come back. He said, ‘If it’s really causing you so much stress, you can definitely get a reduction,'” she said.

She expects to undergo the surgery eventually but said she is not rushing the decision.

“[The doctor] said, ‘I recommend you do get a reduction. It’s just whenever you think you physically can’t bear it anymore,'” she added. “They’ll come back, but not super, super fast.”

The Scottish Woman With Rare Breast Condition Says Doctors Dismissed Her For Over A Decade first appeared on The Blast