Summer Robert was diagnosed with macromastia at 25, a condition that causes excessive growth of the breast tissue

The content creator, now 28, currently wears an R-cup size after growing over 11 bra sizes over the course of the last year due to extreme hormonal growth spurts

Macromatia affects every area of Robert's life, though she has struggled to find proper and sufficient medical attention due to a lack of research

Summer Robert knew something was different about her body as young as 8 years old, when she started wearing a C-cup size bra. It would take over a decade and a half for her to get answers.

At 25 years old, Robert was diagnosed with macromastia, a condition that causes excessive breast growth. Today, at 28 years old, she stands 4 feet 11 inches tall and wears an R-cup bra. In the past year, she tells PEOPLE she grew a total of 11 bra sizes, which demonstrates the way doctors have explained her macromastia manifests.

"Basically, I go through growth spurts," she says, explaining that the rapid growth is triggered by hormones. As medical professionals have explained to Robert, the change in her cup size last year was due to a common hormonal shift many women experience in their 20s. Robert's shifts are just that much more dramatic, though beyond that fact, there's still very little known about the condition.

"I had been going to the doctors since I was like 14 or 13 years old, and not one of them diagnosed me. No one told me that there was a condition," she tells PEOPLE. "They all just said it was puberty. They all just said I had to lose weight. It was ridiculous."

Only a few doctors understand macromatia enough to identify it and sufficiently explain it to patients, Robert says. When she was diagnosed, she remembers how her doctor "literally printed a Wikipedia page and gave me the Wikipedia page."

Robert, who was born and raised in Scotland, grew up dealing with almost constant hyper-sexualization. She's endured years of catcalling on the street, dress code violations at school and, as an adult, every area of her life is affected by her macromatia. In recent years, however, she's come to love and accept her body, and she attributes that confidence to a career pivot: about two years ago, she started creating content on OnlyFans.

Still, her body's abnormality continues to be an obstacle to her daily routine. For one thing, Robert tells PEOPLE that it's extraordinarily difficult for her to find clothes, especially considering the disproportionate sizes of her chest and waist. Everything she wears must be "super stretchy," she says. "Nine times out of 10, it will still not fit ... It's just day-to-day things that you would think are so easy, it's so difficult."

There's also the physical toll macromatia takes on Robert's body. She says nearly any form of "physical activity" requires her to wear a back brace, whether she's going to be walking for a long time or doing something as simple as cleaning her home. She'd like to join a gym, but she says it's really not an option.

The British native had consulted medical professionals about getting a breast reduction, but her macromastia makes that solution somewhat futile. They determined that such a procedure could be effective, but not in the long term.

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"We spoke to a breast reduction specialist, and he told me that they'd just come back. He said, 'If it's really causing you so much stress, you can definitely get a reduction,'" Robert explains. Indeed, she probably will undergo the surgery eventually, but she's not rushing to the operating room quite yet.

"[The doctor] said, 'I recommend you do get a reduction. It's just whenever you think you physically can't bear it anymore,'" she adds. "They'll come back, but not super, super fast."

Read the original article on People